Rural Data for Rural Cancer Efforts
The following links were compiled by Whitney Zahnd, PhD, Assistant Professor, Department of Health Management Policy, University of Iowa, in August 2023. (Original Slides | Presentation Recording) Please email [email protected] with any questions or to report a broken link.
Communities & People
The American Community Survey (ACS)
URL: https://www.census.gov/programs-surveys/acs
Iowa Data: https://data.census.gov/all?q=Iowa
Types of Data: Demographics, socioeconomic factors, housing, etc. Data available at the census tract, zip code tabulation areas (ZCTA), and county levels. Five-year estimates need to be used for these geographic levels (e.g., 2016-2020).
Comments:
- Some of these data are available in the County Health Rankings data downloads
- See also the National Historical Geographic Information System (NHGIS)
Annie E. Casey Foundation / Kids Count Data Center
URL: https://datacenter.aecf.org/
Iowa Data: https://datacenter.aecf.org/data?location=IA#IA/2/0/char/0
Types of Data: Demographics; Economic Well-Being; Family and Community Health; Safety and Risk Behaviors; COVID-19; Youth and Young Adults
National Association of Counties
URL: https://explorer.naco.org/
Types of Data: Demographics, Health, Economy, Education, Transportation, etc.
Comments:
- Maps, profiles, and comparisons available.
- Allows for comparison between Iowa counties or other similar-sized counties.
Rural Health Information Hub
URL: https://www.ruralhealthinfo.org/
Iowa Data: https://www.ruralhealthinfo.org/states/iowa
Types of Data: Demographic background (e.g., race/ethnicity, age, veterans, tribal); Health disparities; Healthcare facilities; and Social determinants of health
Comments:
- Rural Data Explorer: https://www.ruralhealthinfo.org/data-explorer
- Guide for finding rural data: https://www.ruralhealthinfo.org/topics/statistics-and-data
Cancer Burden, Screening, and Relevant Behaviors
Behavioral Risk Factor Surveillance System (BRFSS)
Iowa Data: https://hhs.iowa.gov/brfss
Types of Data: Health behaviors including nutrition, physical activity, tobacco use, hypertension, blood cholesterol, alcohol use, and access to health care.
CDC PLACES
URL: https://www.cdc.gov/places/
Types of Data: Data on county, census-tract, or places throughout the country, including: Health outcomes; Prevention; Health risk behaviors; Health Status
Comments: Includes an interactive map and data downloads
CDC WONDER
Types of Data: Public health data including deaths by cause (including cancer—ICD-10 codes:C00-C97)
Comments:
- All cancer and cancer-specific crude and age-adjusted mortality rates by non-metropolitan and metropolitan comparisons or other combinations of the CDC’s Urban-Rural Classification of Counties
- You can also stratify by race/ethnicity, age, and gender
- Trends and combined year analyses (best practices: use 5-year estimates)
- You can do county-specific mortality rates, but even for 5 years combined you’re likely to have suppressed data
- Can generate text files
County Health Rankings
URL: https://www.countyhealthrankings.org/
Iowa Data: https://www.countyhealthrankings.org/explore-health-rankings/iowa
Types of Data: Health Outcomes (Length and Quality of Life); Health Factors (Behaviors, Clinical Care, Social and economic factors, physical environment); Additional measures.
Comments: County Health Rankings considers many factors to rank counties within a state based upon policies and programs, health factors, and health outcomes.
State Cancer Profiles
URL: https://www.statecancerprofiles.cancer.gov/
Iowa Data: https://www.statecancerprofiles.cancer.gov/quick-profiles/index.php?statename=iowa
Types of Data: State and county-level data: Demographics; Screening and Risk Factors; Incidence; Mortality
Comments:
- Maps, downloadable tables, graphs of trends
- No statewide rural-specific data, but county-level data can be helpful (e.g., identifying high mortality counties—are these rural?)
- Caveats: some county-level data are somewhat dated, some states don’t report cancer data, some data are suppressed
State Cancer Registry / Iowa Cancer Registry
URL: https://shri.public-health.uiowa.edu/
Types of Data: Case counts, incidence and mortality rates for specific cancer sites by year of diagnosis, age, gender, race and county.
TeenVaxView
URL: https://www.cdc.gov/vaccines/imz-managers/coverage/teenvaxview/index.html
Types of Data: Vaccination, including Human Papillomavirus (HPV)
United States Cancer Statistics: Data Visualizations
URL: https://www.cdc.gov/cancer/uscs/index.htm
Types of Data: Cancer incidence and mortality rates by county and Congressional District and cancer type (2020* or 2016-2020)
Comments: 2020 data should be interpreted with caution due to the pandemic
US Health Map
URL: https://vizhub.healthdata.org/subnational/usa
Types of Data: County level estimates for: Life Expectancy; Mortality; Risk Factors. Subgroups available (e.g. gender, race/ethnicity, age) for some measures.
Health Care Access
Area Health Resources File
URL: https://data.hrsa.gov/topics/health-workforce/ahrf
Types of Data: County-level data on health care professions, health facilities, population characteristics, economics, health professions training, environment, and more.
Comments: Data are available as an interactive map, excel or SAS file, or PDF.
Census Small-Area Health Insurance Estimates
URL: https://www.census.gov/data-tools/demo/sahie/#/?state_county=&s_searchtype=s
Types of Data: Single-year estimates of health insurance coverage status for all counties in the U.S. by selected economic and demographic characteristics.
Georgetown University Health Policy Institute Medicaid Coverage (2020-2021)
Types of Data: Children; Non-Elderly Adults
Iowa-Specific Sources
Iowa Health Fact Book
URL: https://iowahealthfactbook.org/
Types of Data: County-level Data on the following elements: Demographic; Social Determinants of Health; Health Behaviors; Mortality (overall, injury, etc); Healthcare providers
Comments: Data are also available by Public Health Region and Congressional District
County Level Data on Cancer Incidence and Mortality
URL: https://www.cancer-rates.info/ia/
Types of Data: Number of cases; Age-adjusted and crude rates
Office of Statewide Clinical Education Programs
URL: https://medicine.uiowa.edu/oscep/data-and-reports
Types of Data: Tracking of health professionals in Iowa, such as: Pharmacists; Nurse Practitioners; Dentists; Physicians; Physician’s assistants
Comments: Statistics, mailing lists, etc., available for purchase