PATIENTS, CAREGIVERS & SURVIVORS
At the Iowa Cancer Consortium, we recognize that advances in cancer prevention, screening, treatment and quality of life are made through scientific research. We connect our partners with reliable sources of information to help them succeed and provide the public with accurate cancer information.
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Adolescent & Young Adult (AYA) Cancer
Advocacy
- American Association for Cancer Research
- American Cancer Society
- American Cancer Society Cancer Action Network – National
- American Cancer Society Cancer Action Network – Iowa
- Beyond Pink Team (Iowa)
- Iowa Army of Pink
- The LIVESTRONG Foundation
- National Coalition for Cancer Survivorship (NCCS)
- Patient Advocate Foundation
- Prevent Cancer Foundation
- Resources for Addressing Cancer Disparities through Policy (Iowa Cancer Consortium)
- Susan G. Komen – National
Alcohol Use
Breast Cancer
- Beyond Pink Team (Iowa)
- Breast Cancer (ACS)
- Breast Cancer (NCI)
- Breast Cancer (CDC)
- Breast Density and Your Mammogram Report (ACS)
- Dense Breasts: Answers to Commonly Asked Questions (NCI)
- Care for Yourself (Iowa Cancer Screening Program)
- Iowa Army of Pink
- Mammography Facilities (FDA)
- National Breast Cancer Roundtable
- National Breast and Cervical Cancer Early Detection Program
- Sisters Network
- Splash of Color
- Susan G. Komen – National
- Transgender People and Breast Cancer
Cancer Plan
All Iowans have a role in reducing the state’s cancer burden. The cancer plan serves as a roadmap for comprehensive cancer control efforts in Iowa for the next five years. It is meant to help provide direction and guide all Iowans involved in cancer to work together towards accomplishing the same goals. View the Iowa Cancer Plan here.
Cancer Screening
- Cancer Screening Overview (NCI)
- Care for Yourself (Iowa Breast and Cervical Early Detection Program)
- Guidelines for the Early Detection of Cancer (ACS)
- Información sobre cáncer en español (American Cancer Society)
- LGBTQ+ Guide for Cancer Screenings (Cedars-Sinai)
- Screening Tests (CDC)
- U.S. Preventive Services Task Force
Chronic Disease
Cervical Cancer/HPV
- Care for Yourself (Iowa Cancer Screening Program)
- Cervical Cancer (ACS)
- Cervical Cancer (CDC)
- Cervical Cancer (NCI)
- Cervivor
- HPV (ACS)
- HPV (CDC)
- HPV (NCI)
- National HPV Vaccination Roundtable
- HPV Vaccination Information for Health Professionals (ACS)
- National Breast and Cervical Cancer Early Detection Program
- National Cervical Cancer Coalition
- National Roundtable on Cervical Cancer
- Prevent 6 Cancers with the HPV Vaccine
Childhood Cancers
Clinical Trials
- Clinical Research Terms Glossary (ACORI)
- Clinical Trials 101 Webinar Recording (Iowa Cancer Consortium)
- Clinical Trials: What you Need to Know (ACS)
- Clinical Trials (NCI)
- Clinical Trails.gov (US National Institutes of Health)
- Clinical Trials Search Form (NCI)
- Holden Comprehensive Cancer Center
- Iowa Oncology Research Association (IORA)
- LGBTQ+ Diversity in Clinical Trials
- More Moments More Memories Foundation
Colorectal Cancer
- 80% in Every Community Initiative
- AliveAndKickn
- The Blue Hat Foundation
- Colon Cancer Alliance
- Colon Cancer Coalition (Get Your Rear in Gear)
- Colon Cancer Foundation
- Colon Cancer Prevention Project
- Colorectal Cancer (ACS)
- Colorectal Cancer (CDC)
- Colorectal Cancer (NCI)
- Colorectal Cancer Foundation of Iowa
- Colorectal Cancer Risk Assessment Tool (NCI)
- Fight Colorectal Cancer
- Iowa Get Screened Colorectal Cancer Program
- National Colorectal Cancer Roundtable
Comprehensive Cancer Control
Data
- Facts and Figures (ACS)
- Iowa Behavioral Risk Factor Survey
- Iowa Cancer Maps
- Iowa Cancer Registry
- Iowa Health Fact Book
- Iowa Public Health Tracking Portal
- SEER (Surveillance Epidemiology and End Results)
- State Cancer Profiles (NCI)
- Rural Health Info Hub
- USCS Data Visualization (CDC)
- Youth Risk Behavior Surveillance System (YRBSS)
Disparities ‘Also see Health Equity’
Environment ‘Also see Radon’
- Agency for Toxic Substances and Disease Registry
- Cancer Clusters Q&A (NCI)
- Cancer-Causing Substances in the Environment (NCI)
- Cancer Health Effects Assessments (National Toxicology Program)
- Farming and Public Health
- National Institute of Environmental Health Sciences
- Occupational Cancer (CDC)
- Radon (NCI)
- Where you Live (EPA)
- University of Northern Iowa (UNI) Center for Energy & Environmental Education
Financial Assistance
- Above + Beyond Cancer Hotel Program
- American Society of Clinical Oncology (ASCO) Financial Resources
- The Avery Foundation
- Cancer Care Financial Assistance Program
- Coping with Cancer: Financial, Insurance and Legal Information (NCI)
- National Financial Resources Guidebook for Patients (PAF)
- Patient Assistance & Reimbursement Guide (ACCC)
- Pharmaceutical Assistance Programs – Prescription Drugs (Triage Cancer)
- A Toolkit for Navigating Finances after Cancer (Triage Cancer)
Health Equity
- APA Style: Bias-Free Language
- Health Equity (CDC)
- Health Equity Guiding Principles for Inclusive Communication (CDC)
- Health Disparities in Cancer (CDC)
- Iowa Primary Care Association
- Intercultural Cancer Council
- National Center for Farmworker Health
- Office of Minority and Multicultural Health (HHS)
- Proteus
- Social Determinants of Health Mapping (CDC)
Hospice
Human Papillomavirus (HPV)
- Adolescent Immunization Resource Guide
- Getting Adolescent Vaccination Back on Track: Messages for Parents – Summer 2020
- HPV (ACS)
- HPV Vaccination Information for Health Professionals (ACS)
- HPV Vaccine Information (Iowa HHS)
- HPV (CDC)
- HPV (NCI)
- HPV Roundtable’s YouTube Playlist for Parents
- National HPV Vaccination Roundtable
- Vaccines for Children
- Vax Talk Podcast
Leukemia & Lymphoma
LGBTQ
- Central Iowa Veterans Administration (Des Moines)
- GLAAD Ally’s Guide to Terminology
- LGBTQ+ Diversity in Clinical Trials
- National LGBT Cancer Network
- One Iowa
- OUT National Cancer Survey
- The Welcoming Project
- UnityPoint Clinic LGBTQ – Methodist (Des Moines)
- UnityPoint Clinic LGBTQ – Prairie Parkway (Cedar Falls)
- University of Iowa LGBTQ Clinic (Coralville)
Lung Cancer
Oral Cancer
Ovarian Cancer
Pain Management
- Cancer Pain Treatment Guidelines (NCCN)
- Cancer Support Community
- Caring Connections
- Center to Advance Palliative Care
- National Center for Complementary and Integrative Health (NCCIH)
- National Coalition for Cancer Survivorship
- National Hospice and Palliative Care Organization (NHPCO)
- NeedyMeds
- Pain Control: Support for People with Cancer (NCI)
- Patient Advocate Foundation
- SafeNetRx
Palliative Care
Patient Navigation
- Cómo Reducir La Toxicidad Financiera: Consejos Para Navegadores De Pacientes (Nuestras Voces Network)
- National Navigation Roundtable
- Personal Health Manager (ACS)
- Patient Advocate Foundation
- Patient Navigation Research Program
- Recursos para pacientes (National Cancer Institute)
- Recursos para personas a cargo del paciente (National Cancer Institute)
- Servicio de Información de Cáncer del Instituto Nacional del Cáncer (National Cancer Institute)
Physical Activity
Prostate Cancer
Quality of Life
Radon
Research ‘Also see Clinical Trials’
Skin Cancer ‘Also see Sun-Safety’
Sun-Safety
Survivorship
- Above + Beyond Cancer (Iowa)
- American Cancer Society Survivorship Care Guidelines
- American Cancer Society National Cancer Survivorship Resource Center
- A Time to Heal Cancer Foundation
- Cervivor
- Cancer Care
- Gilda’s Club of the Quad Cities
- National Coalition for Cancer Survivorship (NCCN)
- Survivorship During and After Treatment (ACS)
- “Talk to Someone” Simulation
- The Cancer Journey (Beyond Pink Team)
Tobacco
- American Cancer Society Center for Tobacco Control
- The Community Guide: Tobacco Interventions
- Community Partnerships in Iowa (Iowa HHS)
- Division of Tobacco Use Prevention & Control (Iowa HHS)
- Health Equity in Tobacco Prevention and Control (CDC)
- Networking2Save
- Smoking & Tobacco Use (CDC)
- Smokefree Air Act (Iowa HHS)
- Smokefree Apartments and Housing (Iowa HHS)
- Smokefree español
- Stop Smoking (ALA)
- Tobacco- and Nicotine-Free School Policies (Iowa HHS)
- Tobacco and Cancer (ACS)
- Tobacco Control Network (National)
- Tobacco Use Prevention & Control Commission (Iowa HHS)
- Quitline Iowa
Tobacco (youth)
- Campaign for Tobacco-Free Kids
- Iowa Students for Tobacco Education and Prevention (ISTEP)
- Tobacco- and Nicotine-Free School Policies (Iowa HHS)
- Youth and Tobacco Use (CDC)
- Youth Tobacco Prevention
Tobacco (smokeless)
- Health Effects of Smokeless Tobacco Products
- Tobacco- and Nicotine-Free School Policies (Iowa HHS)
Tobacco (vaping)
- Know the Risks: E-Cigarettes & Young People (HHS)
- Vaping, E-Cigarettes & Electronic Smoking Devices (Iowa HHS)
- Quitline Iowa
- Tobacco- and Nicotine-Free School Policies (Iowa HHS)
Transportation
Content Disclaimer – The Iowa Cancer Consortium resources are a compilation of internal resources and resources contributed by our members and other third-party organizations. The Iowa Cancer Consortium is not responsible for the content of external resources.
Link Disclaimer – This website contains links to other organizations. A link does not constitute an endorsement of content, viewpoint, policies, products, or services of that website. Once you link to another website not maintained by the Iowa Cancer Consortium, you are subject to the terms and conditions of that website.
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