PATIENTS, CAREGIVERS & SURVIVORS
At the Iowa Cancer Consortium, we recognize that advances in cancer prevention, screening, treatment and quality of life are made through scientific research. We connect our partners with reliable sources of information to help them succeed and provide the public with accurate cancer information.
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Adolescent & Young Adult (AYA) Cancer
Advocacy
- American Association for Cancer Research (AACR)
- American Cancer Society Cancer Action Network (ACS CAN) – National
- American Cancer Society Cancer Action Network (ACS CAN) – Iowa
- American Lung Association
- Beyond Pink Team (Iowa)
- Iowa Army of Pink
- Iowa Oncology Society
- Leukemia & Lymphoma Society
- The LIVESTRONG Foundation
- National Coalition for Cancer Survivorship (NCCS)
- Patient Advocate Foundation
- Prevent Cancer Foundation
- Resources for Addressing Cancer Disparities through Policy (Iowa Cancer Consortium)
- Susan G. Komen
Alcohol Use
Breast Cancer
- Beyond Pink Team (Iowa)
- Breast Cancer (ACS)
- Breast Cancer (NCI)
- Breast Cancer (CDC)
- Breast Cancer Screening for Transgender People – Susan G. Komen
- Breast Density and Your Mammogram Report (ACS)
- Dense Breasts: Answers to Commonly Asked Questions (NCI)
- Care for Yourself (Iowa Cancer Screening Program)
- Iowa Army of Pink
- Mammography Facilities (FDA)
- National Breast Cancer Roundtable
- National Breast and Cervical Cancer Early Detection Program
- Sisters Network – A National African American Breast Cancer Survivorship Organization
- Splash of Color Breast Cancer Support Group
- Susan G. Komen
Cancer Plan
All Iowans have a role in reducing the state’s cancer burden. The cancer plan serves as a roadmap for comprehensive cancer control efforts in Iowa for the next five years. It is meant to help provide direction and guide all Iowans involved in cancer to work together towards accomplishing the same goals. View the Iowa Cancer Plan here.
Cancer Screening
Also See: Cancer Screening & Early Detection Toolkit
- Cancer Screening Overview (NCI)
- Care for Yourself – Breast and Cervical Cancer Early Detection Program
- Guidelines for the Early Detection of Cancer (ACS)
- Iowa Get Screened: Colorectal Cancer Program
- Información sobre cáncer en español (American Cancer Society)
- LGBTQ+ Guide for Cancer Screenings (Cedars-Sinai)
- Screening Tests (CDC)
- U.S. Preventive Services Task Force
Chronic Disease
Cervical Cancer/Human Papillomavirus (HPV)
- The Announcement Approach Training
- Care for Yourself – Breast and Cervical Cancer Early Detection Program
- Cervical Cancer (ACS)
- Cervical Cancer (CDC)
- Cervical Cancer (NCI)
- Cervivor
- HPV (ACS)
- HPV (CDC)
- HPV (NCI)
- HPV Vaccination Information for Health Professionals (ACS)
- HPV Vaccine Information (Iowa HHS)
- National Breast and Cervical Cancer Early Detection Program
- National Cervical Cancer Coalition
- National HPV Vaccination Roundtable
- National Roundtable on Cervical Cancer
- Prevent 6 Cancers with the HPV Vaccine
- Start HPV Vaccination at Age 9
- Vaccines for Adults Program (Iowa HHS)
- Vaccines for Children Program (Iowa HHS)
Childhood Cancers
- American Childhood Cancer Organization
- Cancer in Children and Adolescents (NCI)
- Cancer in Children (ACS)
- Childhood Cancer Data Initiative (NCI)
- Childhood Cancers (NCI)
- Children’s Cancer Connection – Iowa
- If Your Child Has Cancer
- Leukemia & Lymphoma Society
- Red Shamrock Foundation – Iowa
- Research on Childhood Cancers (NCI)
- Second Star Children’s Camp – Iowa
Clinical Trials
See also: Find Cancer Clinical Trials in Iowa
- Clinical Research Terms Glossary (ACORI)
- Clinical Trials: What you Need to Know (ACS)
- Clinical Trials (NCI)
- ClinicalTrails.gov (US National Institutes of Health)
- Clinical Trials Search Form (NCI)
- Holden Comprehensive Cancer Center
- Iowa Oncology Research Association (IORA)
- LGBTQ+ Diversity in Clinical Trials (Cancer Support Community)
Colorectal Cancer
- 80% in Every Community Initiative
- Alive and Kick’n: Living with Lynch Syndrome
- The Blue Hat Foundation
- Colon Cancer Alliance
- Colon Cancer Coalition
- Colon Club
- Colorectal Cancer Control Program (CRCCP)
- Colon Cancer Foundation
- Colon Cancer Foundation of Iowa
- Colon Cancer Prevention Project
- Colorectal Cancer (ACS)
- Colorectal Cancer (CDC)
- Colorectal Cancer (NCI)
- Colorectal Cancer Risk Assessment Tool (NCI)
- Fight Colorectal Cancer
- Iowa Get Screened Colorectal Cancer Program
- National Colorectal Cancer Roundtable
Comprehensive Cancer Control
Data
- Behavioral Risk Factor Surveillance System (BRFSS) – National
- Behavioral Risk Factor Surveillance System (BRFSS) – Iowa
- Cancer Facts and Figures (ACS)
- Cancer Facts & Figures for Hispanic/Latino People (ACS)
- Cancer Map Stories (NCI)
- Interactive Iowa Data Tools (Iowa Cancer Registry)
- Iowa Cancer Registry
- Iowa Health Fact Book
- Iowa LGBTQ Health Needs Assessment (2021)
- Iowa Public Health Tracking Portal
- Iowa Youth Survey
- PLACES: Local Data for Better Health
- SEER Program (Surveillance Epidemiology and End Results)
- Small Area Health Insurance Estimates (SAHIE) Program
- State Cancer Profiles (NCI)
- Rural Health Info Hub
- United States Cancer Satistics Data Visualizations (CDC)
- Youth Risk Behavior Surveillance System (YRBSS) – National
Disability
Disparities (Also see 'Health Equity')
Environment (Also see 'Radon’)
- Agency for Toxic Substances and Disease Registry
- Agricultural Health Study
- Cancer Clusters (NCI)
- Cancer-Causing Substances in the Environment (NCI)
- Cancer Health Effects (National Toxicology Program)
- Center for Health Effects of Environmental Contamination (CHEEC) – Iowa
- Environmental Health Sciences Research Center – Iowa
- Farming for Public Health – Iowa
- Great Plains Center for Agricultural Health
- Iowa Environmental Council
- Iowa’s Center for Agricultural Safety and Health (I-CASH)
- National Institute of Environmental Health Sciences
- Occupational Cancer (CDC)
- Where you Live (EPA)
- University of Northern Iowa (UNI) Center for Energy & Environmental Education
Fertility Preservation
- Financial Assistance Programs (Eligibility Requirements Apply)
- Mid-Iowa Fertility
- University of Iowa Health Care – Fertility and Reproductive Care
Financial Assistance
- Above + Beyond Cancer Hotel Program
- The Avery Foundation
- Cancer Care Financial Assistance Program
- Financial and Insurance Matters (ACS)
- Managing Cancer Costs and Medical Information (NCI)
- National Financial Resources Directory (Patient Advocate Foundation)
- NeedyMeds
- Patient Assistance Fund (The Mission Cancer Foundation)
- Patient Assistance & Reimbursement Guide (ACCC)
- Pharmaceutical Assistance Programs – Prescription Drugs (Triage Cancer)
- A Toolkit for Navigating Finances after Cancer (Triage Cancer)
Health Equity (Also see 'Disparities')
- Advancing Health Equity in Chronic Disease (CDC)
- Health Equity Guiding Principles for Inclusive Communication (CDC)
- Health Equity in Cancer (CDC)
- Iowa Primary Care Association
- Iowa City-Cedar Rapids (ICR) African American and Black Resource Guide
- League of United Latin American Citizens (LULAC)
- National Center for Farmworker Health
- Office of Minority and Multicultural Health (HHS)
- Proteus
Hospice
LGBTQ
- GLAAD Ally’s Guide to Terminology
- LGBTQ Inclusive Healthcare Providers (One Iowa)
- LGBTQ+ Veteran Care (VA Central Iowa Health Care)
- LGBTQ+ Diversity in Clinical Trials
- National LGBT Cancer Network
- One Iowa
- OUT National Cancer Survey
- The Welcoming Project
- UnityPoint Clinic LGBTQ+ Health (Des Moines)
- UnityPoint Clinic LGBTQ – Prairie Parkway (Cedar Falls)
- University of Iowa LGBTQ Clinic (Coralville)
Lung Cancer
Oral/Head & Neck Cancer
- Head and Neck Cancer (Cancer Care)
- Head and Neck Cancer Alliance
- Head and Neck Cancer – Health Professional Version (NCI)
- Head and Neck Cancer – Patient Version (NCI)
- Head and Neck Cancers Basics (CDC)
- The Head and Neck Cancer Foundation
- Oral Cancer (American Dental Association)
- The Oral Cancer Foundation
- Oral Cavity (Mouth) and Oropharyngeal (Throat) Cancer (ACS)
- Support for People with Oral and Head and Neck Cancers
Ovarian Cancer
Pain Management
- Cancer Pain Control: Support for People with Cancer (NCI)
- Cancer Pain Treatment Guidelines (NCCN)
- Cancer Support Community
- CaringInfo
- Center to Advance Palliative Care
- National Center for Complementary and Integrative Health (NCCIH)
- National Coalition for Cancer Survivorship
- National Hospice and Palliative Care Organization (NHPCO)
- NeedyMeds
- Patient Advocate Foundation
- SafeNetRx
Palliative Care
Patient Navigation
- Cómo Reducir La Toxicidad Financiera: Consejos Para Navegadores De Pacientes (Nuestras Voces Network)
- Iowa Oncology Navigation Network (IONN)
- National Navigation Roundtable
- Personal Health Manager (ACS)
- Patient Advocate Foundation
- Recursos para pacientes (National Cancer Institute)
- Recursos para personas a cargo del paciente (National Cancer Institute)
- Servicio de Información de Cáncer del Instituto Nacional del Cáncer (National Cancer Institute)
Physical Activity
Prostate Cancer
- Project Health (Focus on Diabetes) – Iowa
- National Alliance of State Prostate Cancer Coalitions
- Prostate Cancer Awareness of Central Iowa (Team Blue)
- Prostate Cancer (ACS)
- Prostate Cancer (CDC)
- Prostate Cancer – Health Professional Version (NCI)
- Prostate Cancer – Patient Version (NCI)
- Prostate Cancer Foundation
- Zero Prostate Cancer
Quality of Life
Radon
Research (Also see 'Clinical Trials’)
- The Community Guide
- Implementation Science Research & Practice Tools (NIH)
- Iowa Cancer Registry | Research
- Instituto Nacional del Cáncer (National Cancer Institute)
- Native American Cancer Research Corporation
- PubMed
- Recursos para investigadores (National Cancer Institute)
- U.S. Preventive Services Task Force
- University of Iowa College of Public Health
Rural
Skin Cancer (Also see 'Sun-Safety’)
Sun-Safety
Survivorship
- Above + Beyond Cancer – Iowa
- ACS CARES App
- A Time to Heal Cancer Foundation
- Cervivor
- Cancer Care
- The Cancer Journey (Beyond Pink Team)
- Cancer Treatment and Survivorship Care Plans
- Cancer Support Community Iowa & NW Illinois at Gilda’s Club
- Can Do Cancer – Iowa
- Información sobre cáncer en español (American Cancer Society)
- National Coalition for Cancer Survivorship (NCCS)
- Survivorship During and After Treatment (ACS)
- “Talk to Someone” Simulation
- Wings of Hope Cancer Support Center – Iowa
Tobacco
- Nuestras Voces (Our Voices) Network
- Quitline Iowa
- Quitline Iowa en español
- Quit Smoking (ALA)
- SelfMade Health Network (SMHN)
- Smoking & Tobacco Use (CDC)
- Smokefree Air Act (Iowa HHS)
- Smokefree español
- Smokefree Homes (Iowa HHS)
- Stay Away from Tobacco (ACS)
- Tobacco Control Network
- Tobacco Interventions (The Community Guide)
- Tobacco Use Prevention & Control (Iowa HHS)
Tobacco (youth)
Tobacco (smokeless)
Tobacco (vaping)
Transportation
Content Disclaimer – The Iowa Cancer Consortium resources are a compilation of internal resources and resources contributed by our members and other third-party organizations. The Iowa Cancer Consortium is not responsible for the content of external resources.
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